Research and Data

Below are materials that PAR prepared and/or collaborated on with partners across the state and country. These materials are made public for anyone to use to bring more awareness and advocacy to issues facing the Intellectual Disability/Autism system. If you have any questions about these materials please email [email protected].


2024 Pennsylvania Direct Support
Professional & Frontline Supervisor
Compensation Study
Released June 4, 2024
  2022 Pennsylvania Direct Support 
Professional & Frontline Supervisor 
Compensation Study

Released November 18, 2022
Needs Exception Allowance Rate 
Change Survey
Released October 27, 2022
  Diversity Data Collection Survey 
Data Brief

Released March 2, 2022
Systemic Factors Impacting Black 
People in the Workforce & 
Recommendations for ID/A Providers 
Discussion Paper

Released March 2, 2022
  Pennsylvania ODP-Administered HCBS 
Proposed Rate Revisions Impact Analysis

Released January 19, 2022

COVID-19 Pandemic Impact of the
Pennsylvania ID/A Workforce
Crisis CDI Report
Released August 24, 2021

  ID/A Community System Capacity 
Erosion due to the Pandemic

Released June 17, 2021

Fiscal Impact of COVID on ID/A 
Provider Solvency
Released June 17, 2021
  2021 IDA Case and Mortality Rates 
Study Summary
Released June 17, 2021
Impact of COVID-19 on ID/A 
Providers – Cash on Hand
Released April 30, 2020
  PAR IDA Pandemic Findings White Paper
Released October 29, 2020 
PAR IDA Pandemic Findings Infographic
Released November 13, 2020
  2019 DSP Compensation Study
Released January 20, 2019
2020 Case and Mortality Report
Released October 26, 2020
  Impact of COVID-19 on IDA 
Providers Data Brief
Released September 23, 2020
Hospital Denial of Care One Pager
Released January 29, 2021
  Provider Relief Fund Survey Results
Released November 20, 2020