Research and Data

Below are materials that PAR prepared and/or collaborated on with partners across the state and country. These materials are made public for anyone to use to bring more awareness and advocacy to issues facing the Intellectual Disability/Autism system. If you have any questions about these materials please email [email protected].


2022 Pennsylvania Direct Support Professional & Frontline Supervisor Compensation Study
Released November 18, 2022

  Needs Exception Allowance Rate Change Survey
Released October 27, 2022


Diversity Data Collection Survey Data Brief
Released March 2, 2022
  Systemic Factors Impacting Black People in the Workforce & Recommendations for ID/A Providers Discussion Paper
Released March 2, 2022


Pennsylvania ODP-Administered HCBS Proposed Rate Revisions Impact Analysis
Released January 19, 2022
  COVID-19 Pandemic Impact on the Pennsylvania ID/A Workforce Crisis
Released August 24, 2021
ID/A Community System Capacity Erosion due to the Pandemic 

Released June 17, 2021

  Fiscal Impact of COVID on ID/A Provider Solvency
Released June 17, 2021
2021 IDA Case and Mortality Rates Study Summary
Released June 17, 2021
  Impact of COVID-19 on ID/A Providers – Cash on Hand
Released April 30, 2020

PAR IDA Pandemic Findings White Paper
Released October 29, 2020


PAR IDA Pandemic Findings Infographic
Released November 13, 2020



2019 DSP Compensation Study
Released January 20, 2019


2020 Case and Mortality Report
Released October 26, 2020


Impact of COVID-19 on IDA Providers Data Brief
Released September 23, 2020

  Hospital Denial of Care One Pager
Released January 29, 2021

Provider Relief Fund Survey Results
Released November 20, 2020